patulous eustachian tube

[LynneR]

Hi to everyone. I also have PET, and I know how unbearable it can be. But I
want to tell you that I have found a cure that works for me!It is a product
you can buy from a place in California....but I know these sites have
rules, and I'm not sure what I can say. Does anyone know if we can list a
phone number (so the rest of you can order this?)It's nothing short of a
miracle -- it is a nose drop that stops the PET symptoms within 2 minutes
and lasts almost all day. I got the info on it from Dr. Poe, in Boston.I
began using it 2 weeks ago, and I feel like a new person. The wierd thing
is that no one else seems to know about it. Someone tell me what I'm
allowed to say, and I'll gladly give you the info I got!! ~LynneR~

[ENTconsult]

It is perfectly fine for you to give the name of the product youj are using and
any infromation you care to give. Glad you are helped.
Murray Grossan, M.D.
http://www.ent-consult.com

[GW Yeatman]

Post by ENTconsult
It is perfectly fine for you to give the name of the product youj are using and
any infromation you care to give. Glad you are helped.
Murray Grossan, M.D.
http://www.ent-consult.com

Some proprietary "treatments" are held closely secret as you know and
seem to be trying to discourage. This person probably had to sign their
life away just to take the treatment. BUT KNOW ONE WILL HARM THEM BY
CONFIDING WITH AN ANONYMOUS HANDLE. (statement for patient)

GWY

[ENTconsult]

I totally disagree that one shouldn't tell of his success or failure with a
"proprietary " product. Anyone here can tell that they were helped , whether by
voodoo doll or extract of beetle juice. Frankly, I often pick up good ideas
here myself.
a healer may be getting fabulous results with some unique treatment, but unless
he can do a full clinical study, it doesn't get published.
There is a lot of serendipity in medicine. Once upon a time Lithium was just
another paint product, now its used for serious mental illness.
Keep the information coming.
Murray Grossan, M.D.
http://www.ent-consult.com

[GW Yeatman]

Post by ENTconsult
I totally disagree that one shouldn't tell of his success or failure with a
"proprietary " product. Anyone here can tell that they were helped , whether by
voodoo doll or extract of beetle juice. Frankly, I often pick up good ideas
here myself.
a healer may be getting fabulous results with some unique treatment, but unless
he can do a full clinical study, it doesn't get published.
There is a lot of serendipity in medicine. Once upon a time Lithium was just
another paint product, now its used for serious mental illness.
Keep the information coming.
Murray Grossan, M.D.
http://www.ent-consult.com

Actually we "agree" that one should tell of success and not hide it.
WE AGREE but I probably stated it poorly. I was explaining the
proprietary "garbage" for the sake of the poor souls who often fall for
things without much evidence. And my post was on their behalf, not
really as a response to your very correct statement.

We do agree that if something has worked for someone' they should share
the info with others for their consideration.

G. Yeatman MD

[Jennifer Bell]

what is Pet?
LynneR wrote in message

Post by LynneR
Hi to everyone. I also have PET, and I know how unbearable it can be. But I
want to tell you that I have found a cure that works for me!It is a product
you can buy from a place in California....but I know these sites have
rules, and I'm not sure what I can say. Does anyone know if we can list a
phone number (so the rest of you can order this?)It's nothing short of a
miracle -- it is a nose drop that stops the PET symptoms within 2 minutes
and lasts almost all day. I got the info on it from Dr. Poe, in Boston.I
began using it 2 weeks ago, and I feel like a new person. The wierd thing
is that no one else seems to know about it. Someone tell me what I'm
allowed to say, and I'll gladly give you the info I got!! ~LynneR~

[ENTconsult]

Pet is patulous eustachian tube - as it is used here. The eustachian tube is
supposed to close except on swallowing. If it remains open all the time the
voice sounds hollow.
Murray Grossan, M.D.
http://www.ent-consult.com

[jganders]

Product endorsement is really tricky on newsgroups. It should raise a
red flag with all readers. There is obviously the opportunity for
monetary gain by product manufacturers (with zero advertising cost), to
pitch their often unproven products here. Its the wild wild west
snakeoil show. It'd be great if there was some kind of resource to
check a product. Anyone know?

[Susan]

x-no-archive: yes

Post by jganders
Product endorsement is really tricky on newsgroups. It should raise a
red flag with all readers. There is obviously the opportunity for
monetary gain by product manufacturers (with zero advertising cost), to
pitch their often unproven products here. Its the wild wild west
snakeoil show. It'd be great if there was some kind of resource to
check a product. Anyone know?

One has to consider a lot of things in determining the reliability of a product
review.

If the poster has never been part of this group before, then comes here touting
a product, it's likely just a scam or spam or less than reliable for some
reason.

If a poster has been with us a while, we can make our own evaluation about
his/her accuracy and/or reliability. Anytime any of us makes a claim, reports
a success or shares a treatment experience, I think that should be a sign to
the rest of us that some investigation and research on our part is in order.
None of us should take anyone's word as a solid fact.

I think that, as a rule, those who *tell* others what they have or what causes
*their* tinnitus and *tells* them how to treat it should be taken with a grain
of salt; they usually have only a hammer, and everything looks like a nail to
them.

There are a lot of different causes of tinnitus, cure (or near cure, as in my
case) is possible for some, unlikely for most. Once all curable/treatable
conditions have been addressed, habituation becomes the critical next step, if
treatment fails.

Susan

[ENTconsult]

Products should be judged on how they compare in effectiveness to EERIE Wax.
Murray Grossan, M.D.
http://www.ent-consult.com

[Bill]

Post by jganders
Product endorsement is really tricky on newsgroups. It should raise a
red flag with all readers. There is obviously the opportunity for
monetary gain by product manufacturers (with zero advertising cost), to
pitch their often unproven products here. Its the wild wild west
snakeoil show. It'd be great if there was some kind of resource to
check a product. Anyone know?

There are several. Go to www.quackwatch.com and then pull down the
"affiliated sites" list.

[Elly Byrne]

Quackwatch is very biased. It is written by a medical person.

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/

Post by Bill

Post by jganders
Product endorsement is really tricky on newsgroups. It should raise a
red flag with all readers. There is obviously the opportunity for
monetary gain by product manufacturers (with zero advertising cost), to
pitch their often unproven products here. Its the wild wild west
snakeoil show. It'd be great if there was some kind of resource to
check a product. Anyone know?

There are several. Go to www.quackwatch.com and then pull down the
"affiliated sites" list.

[drfrank21]

Post by Elly Byrne
Quackwatch is very biased. It is written by a medical person.
Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/

Your statement makes no sense to me. Biased against what?? Exposing
fraud?? Exposing scams??

So Quackwatch would NOT be biased
if written by a layperson.......??

frank

[Susan]

x-no-archive: yes

Post by drfrank21
Your statement makes no sense to me. Biased against what?? Exposing
fraud?? Exposing scams??

It's just biased against anything Barrett doesn't personally believe in. Which
is a lot of very important stuff.

But it's not because he's an alleged medical person, it's because he's a total
jerk.

Susan

[Elly Byrne]

Post by drfrank21

Post by Elly Byrne
Quackwatch is very biased. It is written by a medical person.

Your statement makes no sense to me. Biased against what?? Exposing
fraud?? Exposing scams??
So Quackwatch would NOT be biased
if written by a layperson.......??
frank

Biased against anything that is alternative treatment.
Biased against anything that is not MEDICAL..


Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/

[Bill]

Post by Elly Byrne

Post by drfrank21

Post by Elly Byrne
Quackwatch is very biased. It is written by a medical person.

Your statement makes no sense to me. Biased against what?? Exposing
fraud?? Exposing scams??
So Quackwatch would NOT be biased
if written by a layperson.......??
frank

Biased against anything that is alternative treatment.
Biased against anything that is not MEDICAL..

After reading several reports at quackwatch.com it strikes me that their
reporting is in keeping with their stated mission. They report on
treatments that fail to meet medical standards for effectiveness. Yes, they
are biased against treatments that fail to meet such standards but so am I.
Complaining about quackwatch is like saying NPR is "liberal" because they
report events that don't flatter conservatives; as if they didn't report on
Clinton's behavior. The news is the news. Simple as that.

[Susan]

x-no-archive: yes

Post by Bill
After reading several reports at quackwatch.com it strikes me that their
reporting is in keeping with their stated mission. They report on
treatments that fail to meet medical standards for effectiveness. Yes, they
are biased against treatments that fail to meet such standards but so am I.
Complaining about quackwatch is like saying NPR is "liberal" because they
report events that don't flatter conservatives; as if they didn't report on
Clinton's behavior. The news is the news. Simple as that.

Well, no, they don't include nor consider any reports that conflict with what
Barrett already believes. Cherry picking, I believe it's called.

In the case of Lyme disease, for example, Barrett ignored a tremendous body of
good, peer reviewed research provided to him.

Susan

[ladybug83]

Curious if anyone else has tried these drops and do they work for just
anyone? I am to the point of trying anything. Please send me any
information available.

[cloudcity]

please email any info on this supposed cure... or post it up

many thanks

[Jim Chinnis]

Post by jganders
Product endorsement is really tricky on newsgroups. It should raise a
red flag with all readers. There is obviously the opportunity for
monetary gain by product manufacturers (with zero advertising cost), to
pitch their often unproven products here. Its the wild wild west
snakeoil show. It'd be great if there was some kind of resource to
check a product. Anyone know?

Common sense can help. In this case, the poster's credibility in the group is
unknown; being new, the possibility of a scam runs high. OTOH, the physicians
mentioned appear reputable: I know only good things about Poe (who supposedly
recommended the drug) and Dr. Grossan has commented on the Dr. who supplies
it.

Then there is the question of why on earth someone would choose to try to get
rich on a scam treatment for patulous eustachian tube!

[Howard Gutnick]

Post by Jim Chinnis

Post by jganders
Product endorsement is really tricky on newsgroups. It should raise a
red flag with all readers. There is obviously the opportunity for
monetary gain by product manufacturers (with zero advertising cost), to
pitch their often unproven products here. Its the wild wild west
snakeoil show. It'd be great if there was some kind of resource to
check a product. Anyone know?

Common sense can help. In this case, the poster's credibility in the group is
unknown; being new, the possibility of a scam runs high. OTOH, the physicians
mentioned appear reputable: I know only good things about Poe (who supposedly
recommended the drug) and Dr. Grossan has commented on the Dr. who supplies
it.
Then there is the question of why on earth someone would choose to try to get
rich on a scam treatment for patulous eustachian tube!
--
Jim Chinnis / Warrenton, Virginia, USA
Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG

My god man. Do you not know that there are millions and millions of people
in North Dakota alone who are miserable and absolutely suffer from a
patulous eustachian tube. Extend the numbers in North Dakota alone to the
rest of the U.S., and you have a pandemic of patulous eustachian tube
sufferers. How narrow minded and myopic can you be to have not recognized
this!

HNG

[mazomatic]

Hi,

I suffer from PET for so many years. I really would like to get more
information of this treatment. I heard a lot of Dr.Poe, so I think it
could help me, too.
Lynne, please send that Information to me !
Thanks,
mazomatic

[tr_ruby]

Lynne, can you tell me the name of the nosedrops that you got from Dr. Poe?
I am new to the boards. I have suffered with PET for 20 years. Any
information that you could provide would be helpful.
Thanks

[FJH]

Help: I have been diagnosed with PET after seeing 5 doctors, two months of
PT, 6 months of TMJ treatment, etc, I just had surgery on one ear to try
to permanently close the eustachian tube. Don't think it worked. Does
anyone know if the patient study is still active at Ear Foundation in
Santa Barbara? Also please send info on the ear drops. Any other
suggestions? The only relief I have is when I am sleeping. FJH

[annsdc]

I would also like to know the name of the nosedrops that brought you relief
from PET. Any information that you can send me would be greatly
appreciated.

[annsdc]

you can read more about this condition at earfdn.org

[j***@gmail.com]

Post by LynneR
Hi to everyone. I also have PET, and I know how unbearable it can be. But I
want to tell you that I have found a cure that works for me!It is a product
you can buy from a place in California....but I know these sites have
rules, and I'm not sure what I can say. Does anyone know if we can list a
phone number (so the rest of you can order this?)It's nothing short of a
miracle -- it is a nose drop that stops the PET symptoms within 2 minutes
and lasts almost all day. I got the info on it from Dr. Poe, in Boston.I
began using it 2 weeks ago, and I feel like a new person. The wierd thing
is that no one else seems to know about it. Someone tell me what I'm
allowed to say, and I'll gladly give you the info I got!! ~LynneR~